Q: I started having MS-like symptoms in 1997 at the age of 36; I’m now 52. I had an MRI of my brain in 2009 (funded by MSAA). Unfortunately, my local doctor did not include the dye for the enhanced MRI. The MRI did show some lesions according to the radiologist’s report, but the neurologist didn’t think the MRI of my brain indicated MS. I also had a lumbar puncture, which according to the neurologist, did not have any evidence of the markers for MS in the spinal fluid.
Read News ArticleAuthor: Hoff Communications
Program Notes: Aquatic Exercise and MS Showcased in New Online Resource Center
MSAA is proud to announce the launch of its new Swim for MS online Aquatic Center as part of our national campaign promoting water-based exercise for people with multiple sclerosis, developed through a collaborative partnership with Genzyme, a Sanofi company. Accessed at SwimForMS.org, the comprehensive web center showcases MSAA’s national program initiative supporting the awareness, understanding, and availability of swimming and aquatic exercise as a positive wellness opportunity for the MS community.
Read News ArticleThoughts about Giving: What Is Our Impact?
As the debate continues around ratings, ratios, and watchdogs, nonprofits around the country are focused on how to emphatically and accurately communicate their value. If the purpose of charities is to right social wrongs, alleviate distress, or improve lives, how do we know when we are doing our job? What do overhead and stars have to do with the effect an organization is having on the fulfillment of its mission? If ratings do not suitably portray the efficiency of an organization’s operations – then how do we know our dollars are being well spent? What is our impact?
Read News ArticleStories to Inspire: Why I Swim
During December 2013, MSAA held a nationwide call for entries for the Swim for MS – Why I Swim campaign through a collaborative sponsorship with Genzyme. Individuals with MS who swim or participate in water-based exercise as part of their wellness plan were asked to share their personal story about how these water activities made a positive impact on their lives.
Read News ArticleGenzyme Resubmits Lemtrada to the FDA
Genzyme, a Sanofi company announced today that they will resubmit its supplemental Biologics License Application (sBLA) for approval of Lemtrada (alemtuzumab) for relapsing forms of multiple sclerosis, according to a press release issued by Genzyme. Following discussions with the Food and Drug Administration (FDA), Genzyme intends to submit the application, addressing issues previously noted by the FDA in its Complete Response Letter.
Read News ArticleMultiple Sclerosis Association of America’s Nationwide Search Uncovers Inspiring Stories of People Living with MS Who Swim for Better Health
In honor of Multiple Sclerosis (MS) Awareness Month, the Multiple Sclerosis Association of America (MSAA), through a collaborative partnership with Genzyme, a Sanofi company, is proud to announce the stories from three individuals in the MS community who describe how swimming has helped manage their MS symptoms and improve their overall well-being. Today, MSAA is unveiling their compelling stories captured on video at www.SwimForMS.org, along with new how-to resources about water-based exercise to help improve the lives of individuals living with MS.
Read News ArticleMSAA Partners with Wearable Hope to Raise Funds and Awareness for MS
The Multiple Sclerosis Association of America (MSAA) has been chosen as Wearable Hope’s partner organization of the week! Starting March 4, 2014, you can shop for MSAA t-shirts at www.wearablehope.com and choose from one of two custom designed shirts.
Read News ArticleMarch is MS Awareness Month
The Multiple Sclerosis Association of America (MSAA) recognizes March as MS Awareness Month. MSAA urges everyone to help raise awareness of multiple sclerosis throughout your community and help improve the lives today for people with MS and their families.
Read News ArticleThe Multiple Sclerosis Association of America Publishes 2014 MS Research Update
The Multiple Sclerosis Association of America (MSAA) is pleased to offer the latest MS Research Update, available as both a printed and online publication. This vital resource provides a comprehensive overview of research findings on the ten FDA-approved disease-modifying therapies for relapsing forms of multiple sclerosis (MS), as well as the latest study results on many experimental treatments currently under investigation. Directions for future research are also presented.
Read News ArticleMS Coalition Submits Letter to FDA Regarding Lemtrada Denial
The Multiple Sclerosis Coalition (MSC) is a collaborative network of independent MS organizations whose mission is to increase opportunities for cooperation and provide greater opportunity to leverage the effective use of resources for the benefit of the MS community. Members of this organization have collectively sent a letter to the United States Food and Drug Administration (FDA), asking for clarification and reconsideration of various issues involved in the FDA’s recent denial of Lemtrada™ (alemtuzumab, formerly Campath).
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