When patients and their healthcare team are sharing information and working together rather than apart, the results of this teamwork can lead to great success. Known as “Shared Management,” this philosophy encourages members of the MS community to proactively manage their healthcare needs and overall wellness by researching information, tracking and reporting results, and developing direct and open communication with their neurologist and other treating specialists.
To support this effort, MSAA is continuing to develop a series of tools to manage MS – helping individuals to be proactive and take steps toward better health and an improved quality of life.
- My MS Manager™ – a free mobile phone application to track disease activity, store medical information, generate reports, and the ability to connect to physicians and one’s healthcare team via the app to share progress and reports securely and as needed.
- MSAA’s S.E.A.R.C.H.™ Program – tools to help individuals learn about approved long-term treatments for MS, along with questions to discuss with the patient’s medical team.
- My MS Resource Locator® – an MS-specific, online database offering targeted information and unique support services with categories ranging from insurance to housing needs.
Individuals may also call MSAA’s Helpline at (800) 532-7667, extension 154 to speak with a Client Services Specialist or email MSQuestions@mymsaa.org.
My MS Second Act Digital Storytelling Toolkit
MSAA is excited to introduce My MS Second Act, an educational resource that aims to raise awareness about progressive stages of multiple sclerosis (MS), specifically, secondary progressive multiple sclerosis (SPMS), and underscore the need to identify symptoms of progression early. Developed in partnership with Novartis, this resource encourages those with MS to use the power of storytelling to speak confidently with their physicians and care partners about progressing symptoms during their “second act.” The unpredictability of MS combined with concerns about future health can make it difficult to acknowledge changes or talk about your journey with others. That’s when storytelling can play a valuable role.
As part of the My MS Second Act, MSAA and Novartis have created a digital storytelling toolkit to help those living with MS understand how to identify symptoms, talk to their healthcare professionals, and connect with others affected by MS. The digital toolkit includes: tips and tricks to storytelling, video storytelling guidelines, testimonials, and an SPMS fact sheet.
Download the digital storytelling toolkit and begin crafting your personal story today!