Individuals with MS are at higher risk for emotional disorders, which can significantly disrupt family, work, and social life. These mood disorders are highly treatable through a combination of psychiatric and psychological therapy and medication treatment.
Read News ArticleAuthor: Hoff Communications
Biosimilars: Approval on the Horizon
Very likely, the FDA will soon decide on the status of the first alternative “biologic” drugs to challenge the branded disease-modifying therapies (DMTs) presently in use by individuals with multiple sclerosis (MS). Several of the current DMTs approved by the United States Food and Drug Administration (FDA) are “biologics,” which means that the active ingredient for each of these drugs is derived from living cells.
Read News ArticleUp Front: Information, Advocacy, and Collective Impact
This past winter has been particularly unpredictable and challenging, with record-breaking snowfalls and cold temperatures. These past few months have also proven unpredictable and challenging for our MS population, as individuals experience record-breaking changes in the healthcare system with the introduction of the Affordable Care Act (ACA).
Read News ArticleAsk the Doctor: No Diagnosis after 16 Years of Symptoms
Q: I started having MS-like symptoms in 1997 at the age of 36; I’m now 52. I had an MRI of my brain in 2009 (funded by MSAA). Unfortunately, my local doctor did not include the dye for the enhanced MRI. The MRI did show some lesions according to the radiologist’s report, but the neurologist didn’t think the MRI of my brain indicated MS. I also had a lumbar puncture, which according to the neurologist, did not have any evidence of the markers for MS in the spinal fluid.
Read News ArticleProgram Notes: Aquatic Exercise and MS Showcased in New Online Resource Center
MSAA is proud to announce the launch of its new Swim for MS online Aquatic Center as part of our national campaign promoting water-based exercise for people with multiple sclerosis, developed through a collaborative partnership with Genzyme, a Sanofi company. Accessed at SwimForMS.org, the comprehensive web center showcases MSAA’s national program initiative supporting the awareness, understanding, and availability of swimming and aquatic exercise as a positive wellness opportunity for the MS community.
Read News ArticleThoughts about Giving: What Is Our Impact?
As the debate continues around ratings, ratios, and watchdogs, nonprofits around the country are focused on how to emphatically and accurately communicate their value. If the purpose of charities is to right social wrongs, alleviate distress, or improve lives, how do we know when we are doing our job? What do overhead and stars have to do with the effect an organization is having on the fulfillment of its mission? If ratings do not suitably portray the efficiency of an organization’s operations – then how do we know our dollars are being well spent? What is our impact?
Read News ArticleStories to Inspire: Why I Swim
During December 2013, MSAA held a nationwide call for entries for the Swim for MS – Why I Swim campaign through a collaborative sponsorship with Genzyme. Individuals with MS who swim or participate in water-based exercise as part of their wellness plan were asked to share their personal story about how these water activities made a positive impact on their lives.
Read News ArticleGenzyme Resubmits Lemtrada to the FDA
Genzyme, a Sanofi company announced today that they will resubmit its supplemental Biologics License Application (sBLA) for approval of Lemtrada (alemtuzumab) for relapsing forms of multiple sclerosis, according to a press release issued by Genzyme. Following discussions with the Food and Drug Administration (FDA), Genzyme intends to submit the application, addressing issues previously noted by the FDA in its Complete Response Letter.
Read News ArticleMultiple Sclerosis Association of America’s Nationwide Search Uncovers Inspiring Stories of People Living with MS Who Swim for Better Health
In honor of Multiple Sclerosis (MS) Awareness Month, the Multiple Sclerosis Association of America (MSAA), through a collaborative partnership with Genzyme, a Sanofi company, is proud to announce the stories from three individuals in the MS community who describe how swimming has helped manage their MS symptoms and improve their overall well-being. Today, MSAA is unveiling their compelling stories captured on video at www.SwimForMS.org, along with new how-to resources about water-based exercise to help improve the lives of individuals living with MS.
Read News ArticleMSAA Partners with Wearable Hope to Raise Funds and Awareness for MS
The Multiple Sclerosis Association of America (MSAA) has been chosen as Wearable Hope’s partner organization of the week! Starting March 4, 2014, you can shop for MSAA t-shirts at www.wearablehope.com and choose from one of two custom designed shirts.
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