For many, being newly diagnosed finally gives a name to having some unexplained symptoms. Often before a diagnosis of multiple sclerosis (MS), a person might experience various symptoms, such as visual problems, numbness, or weakness, for example. Not knowing what is wrong and what might happen next is both worrisome and frightening.

MS is not contagious, and in general, does not usually shorten one’s life expectancy. Some individuals, particularly those who are significantly inactive, may experience the typical complications of a prolonged chronic illness (such as infection or pneumonia). Living a healthy lifestyle (under the direction of your doctor) in terms of diet, exercise, preventative healthcare, and not smoking, can help you to feel your best.

Some people who are newly diagnosed may experience confusion or even a sense of anger toward medical professionals and others, who may be providing you with too much information too quickly… or conversely, too little information. You will need time to adjust to the new diagnosis, so take things in at your own pace. You may want to know all you can right away, and if so, consulting reliable resources will provide you with accurate information on everything you need to know.

Most family and friends will try to be supportive, but at times they might not know what to do. They may need reassurance from you, to find out how you are coping with your new diagnosis and any symptoms you may be experiencing. A few friends or family members may even look at you differently, because they don’t understand how difficult this may be for you.

Being honest and open with your children is the best plan. They know when you are secretive or elusive and that becomes more frightening, coupled with the keen ability of a child’s imagination. Remember that a child’s attention span is short. Find out what your child already knows and then share pieces of basic information in an age-appropriate way as tolerated during the course of several days or weeks.

Developing a comprehensive plan of care, one that is not limited to multiple sclerosis, is vitally important. This should be done together between you and your healthcare providers. Such a plan includes management of overall health issues that should not be neglected. Most importantly, patients need to be very careful not to blame every symptom on multiple sclerosis.

An employee with a diagnosis of multiple sclerosis should consider whether or not to disclose his or her diagnosis to his or her employer. In disclosing your diagnosis, it may be easier for you to receive the accommodation necessary to continue to be effective in your position. However, there may be some risk in disclosure.

MSAA can help in many ways. Please see this section for contact information and options for receiving vital information and support.