How MSAA Can Help
INFORMATION AND EDUCATION
MSAA’s website provides a wealth of information at mymsaa.org. This includes written information, online videos, event listings, and more.
Multiple Sclerosis Information (MSi) is MSAA’s growing library of award-winning, on-demand video programming and archived webcasts. These feature healthcare professionals who provide valuable insights and updated information on the latest advances in MS research, disease and symptom management, wellness strategies, and more. Please visit mymsaa.org/ms-information/videos for more information.
All of MSAA’s award-winning publications are designed to be easy to read, informative, and inspiring. These include MSAA’s magazine, The Motivator, published twice yearly, and the widely acclaimed MS Research Update, published annually. Other publications include children’s books on MS, as well as booklets on such topics as how to S.E.A.R.C.H.™ for the best disease-modifying therapy, understanding depression in MS, and treating relapses, among others. Please visit mymsaa.org/ms-information/publications or call (800) 532-7667 for more information.
MSAA’s educational programs provide an excellent opportunity to connect clients with many of the country’s leading MS healthcare professionals. These events provide information in an easy-to-understand conversational format that strongly encourages open dialog between clients and presenters. Please visit MSAA’s homepage (at mymsaa.org) and select “Calendar of Events” at the center of the top menu bar to view events happening in your area, or call MSAA at (800) 532-7667 for more information.
At SwimForMS.org, individuals may also visit MSAA’s online Aquatic Center. Given the fact that water offers an ideal exercise environment for individuals with MS, this comprehensive online Aquatic Center features key information about aquatic exercise, helpful tips, and inspirational stories from people with MS.
MSAA’s Helpline allows individuals with MS, family members, care partners, and friends, to speak directly with one of MSAA’s experienced consultants by calling (800) 532-7667. Individuals may also email questions to MSquestions@mymsaa.org or have a live Chat while visiting MSAA’s website.
MSAA’s Helpline consultants can offer encouragement to clients and their care partners to identify obstacles and discover ways to overcome them. Helpline consultants may also recommend the program(s) offered by MSAA and other resources that would be of help to the caller, and assist him or her with the application process. Members of the MS community are also encouraged to connect through our online blog, “MS Conversations,” and through other social media.
SHARED-MANAGEMENT TOOLS TO MANAGE MS
“Shared Management” is a new philosophy supported by MSAA, where both the patient and healthcare providers work together to achieve the best possible health outcomes for the patient. To date, MSAA has developed three programs as part of its Shared-Management philosophy:
- My MS Resource Locator® – an MS-specific, online database offering targeted information and unique support services, including detailed guides.
- My MS Manager™ – a mobile-phone application to track disease activity, store medical information, generate reports, and assist individuals with their treatment plan.
- MSAA’s S.E.A.R.C.H.™ Program – tools to help individuals with learning about the approved long-term treatments for MS, along with questions to discuss with the patient’s medical team.
COOLING AND ASSISTIVE EQUIPMENT
Many people with multiple sclerosis are heat sensitive, experiencing increased symptoms when in warm temperatures. MSAA’s Cooling Program offers cooling vests and accessories for adults with multiple sclerosis as well as children diagnosed with pediatric MS.
MSAA’s Equipment Distribution Program offers products designed to improve safety, dignity, mobility, and independence. MSAA provides items such as shower chairs, grab bars, hand rails, and mobility devices. MSAA provides equipment through both programs at no charge (certain restrictions may apply) and ships directly to clients. Please visit mymsaa.org/msaa-help/cooling-products for more information on either of these programs.
Magnetic resonance imaging (MRI) is a vital tool for diagnosing multiplesclerosis and tracking its progression. MSAA has created two separate MRI programs: the MRI Diagnostic Fund helps individuals who are suspected of having MS obtain an initial diagnostic MRI exam; and the MRI Institute, which provides advocacy and financial assistance to those already diagnosed and in need of a follow-up MRI scan. Please visit mymsaa.org/msaa-help/mri for more information.
OTHER MSAA PROGRAMS
Additional programs and services include MSAA’s free Lending Library, Networking Program, and more. For more information, please visit MSAA’s website at mymsaa.org or call the Helpline at (800) 532-7667.